Finalllllllly! I'm back and it feels sooooo good!! :) I am trying to get my head past the annoying fact that I can't change the font as I'm writing this. I love my pretty, eloquent flourishes!! But I need to look past that and catch y'all up! As if that's even possible!? Eek! For starter's, HUGE thanks to my dear sister-in-law, Whitney, for giving my blog a face lift! I have avoided blogging in so long because it simply depressed me. All the memories of those times in the hospital and the worrying that was a dark shroud over our family. It definitely had a feel to it. I'd like to change that. I want it to be more positive and full of life and joy. Because that's how we are now! Life is good and we are abundantly blessed and full of joy!
Our sweet, angelic daughter Riley, is now 2 years old! (gasp!) Yup! Almost every day now, I look at her and comment out loud, to whoever will listen, on how BIG she is! She most certainly is a toddler in every sense of the word, and I'm going through a little withdrawal here. :( Just realizing that she'll never be a little baby and too soon she won't fit on my lap, in the crook of my arm as we snuggle on the couch watching movies in the evening. Or how easily I pick her up and swing her around. Or the "MAMA! MAMA!" that I hear at the bathroom door almost every morning as I'm taking my shower. Okay, I've got to stop before I need to break out the Kleenex. My point is, the all-too-common "They grow up so fast!" rings so true. Every day's a blessing. Every day I try to remind myself to slow down, breath and take a mental/emotional snapshot of what's right in front of me.
So yes, Riley is doing astonishingly well (knock on wood!) Her TSC dr told us that she is not following statistics so not to go by them. She will be seizure-free for two whole years come April!!! It's hard to believe, but it's true! PRAISE GOD!! <3 I still wonder if she's not completely healed. But until they do another MRI, we won't know what the tumors look like. She will be having another EEG at her check up with her neurologist Dr. Lachhwani on Dec. 7. Just to check on the brain activity and make sure there's nothing "under the radar" that's not being manifested physically.
Since Riley just continues to improve, we have been able to stop all therapy, physical and speech! :) There is little difference in her and other two year old's her age. She's a lil short (like her Mama;) and still thin (not like her Mama) but activity wise she keeps up! The girl likes to run. I would know! lol Her speech is pretty amazing! She's a little shy in front of other people but when she's comfortable, get ready! She will yak your ear off with all her hand gestures and head tilts with her questioning tone! :) We have started potty training and she loves it! Her favorite things right now are puppies, Hello Kitty, fruit gummies, dollies, socks and shoes, feeding herself, drawing with whatever she can find, and just recently singing! (Sweetest thing you ever did hear!) It honestly sounds like she's trying to talk over you because its so loud but then she holds a sound and you know she's singing!
Well that's all for tonight! More to come on Galen and I, our recent move, Riley's future with TSC and pictures!
All my love, Kamzin
